We are pleased to invite you to the International Usher Info Symposium that will take place in Paris on June 26th-27th, 2020.
This event is entirely dedicated to Usher syndrome, a rare genetic disease associating sensorineural deafness, visual impairment due to retinitis pigmentosa and sometimes vestibular impairment. It will gather outstanding experts and actors (ENTs, ophthalmologists, residents, young scientists, students, patient associations) in the field of sensory disorders.
Our conference is open to patients and their families with a half day specially dedicated to informing patients and patient advocacy groups and will consist off :
- June 26 and June 27 morning, 2020: International Usher info Scientific Symposium
- June 27 afternoon, 2020: International Usher info Patient Symposium (official language: French)
Our event is totally dedicated to Usher syndrome and organized in the framework of the research project LIGHT4DEAF funded by Investir l’Avenir and the French National research Agency aiming to implement a major, concerted and interdisciplinary effort from scientists, ophthalmologists, ENT specialists, vestibular, neuro‐cognitive and human sciences expert in order to address unmet USH patient clinical needs.
Due to exceptional circumstances we will not be able to provide full accessibility.